New Delhi|HL
There are many diseases that affect the younger generation and autoimmune rheumatic diseases are one of them. Mainly these diseases are not noticed by the government and due to this, there is a lack of awareness among the public.
The problems and challenges of patients suffering from Auto Immune Rheumatic Disorder is increasing in the country. The lack of awareness about these diseases in society and the apathy of the health system is a big reason behind this.
Talking on the subject Prof. Dr. Jugal Kishore, Director and HOD, Department of Safdarjung Community Medicine said due to lack of information and not getting timely treatment, patients suffering from Auto Immune Rheumatic Disorder are in the grip of unnatural disability.
Unavailability of Health insurance :
Patients suffering from Auto Immune Rheumatic Diseases do not get the facility of health insurance. Due to inclusion in the delisting of IRDA, patients are deprived of the facility of health insurance.
CAAS India’s awareness campaign :
The Campaign Against Ankylosing Spondylitis (CAAS India), a volunteer patient group, has started a special campaign to create awareness about community health and especially for autoimmune rheumatic diseases. Under the campaign, CAAS India launched a YouTube channel to reach the masses. https://www.youtube.com/c/caasindia/featured This informative video library has been made available for the patients. Here one can get important information related to diseases.
According to Ankur Shukla, founder of the group, first of all, people need awareness and information about these diseases so that they can learn and become sensitive to patients suffering from such diseases. With the development of awareness about these diseases, alertness will also increase. With alertness and awareness, people will be able to act at the right time instead of wandering for treatment and patients will be saved from disability.
Ankylosing spondylitis an autoimmune disorder:
Ankylosing spondylitis is an autoimmune disorder category of disease. The cause of the disease is not known. There is no cure for this disease. It can only be managed. The disease affects only 15 to 35-year-olds. The immunity of a person suffering from this disease starts against his body and damages the soft tissue between the joints of bones. As a result, the joints deteriorate and join together. The most common side effect of this is on the spinal cord, due to which the body’s posture has deteriorated and the patient becomes disabled at a young age.